If you'd like to get involved in brain injury research with groups based on Imperial College London, please see below for 2 new opportunities!
The traumatic brain injury research group at Imperial College London are looking for volunteers who have had a traumatic brain injury to help them test out some new online tests. These computerised tests are part of a pilot project designed to look at thinking abilities after TBI.
Volunteers will be asked to complete 5 sessions of tests online so that the research team can ensure that all of the tests are working well before they are rolled out to a number of hospitals in London. If you would be interested in helping the team or finding out more, please email Amy Jolly at amy.jolly1[at]nhs.net who will be able to answer any further questions.
This research study looking into dizziness after traumatic brain injury (TBI) is looking for patient members to join its steering group. Please contact Rebecca Smith (rebecca.smith[at]imperial.ac.uk) for more information or if you're interested.
To give you a bit more information:
- We’re looking for 2 members if possible to be part of the steering group
- Members of the group will receive appropriate training
- The group would aim to meet every 6 months to provide input to the protocol and to monitor the progress of the trial
- There are funds to reimburse members for their travel and time
- There is some information below about the study – although the full protocol hasn’t yet been confirmed
WHY DIZZINESS IN TBI?
Dizziness in head injury is a common problem – one which is not always well managed. We are hoping to improve dizziness care in the acute stage of head injury (i.e. whilst patients are still in hospital). We hope this will mean less patients have less problematic symptoms in the long term and can return to work and their daily life more quickly.
One form of dizziness - Benign paroxysmal positional vertigo (BPPV) is very common in head injury patients. In fact our recent work shows approximately 50% of head injury patients have this type of dizziness whilst they are in hospital. It can be easily diagnosed and treated at the bedside without specialist equipment. However, some of our new research has shown many patients with BPPV do not complain of dizziness. This means many patients do not receive appropriate treatment and return home predisposed to long term dizziness and high risk of falls. Our recent work has also shown staff working on the major trauma ward at St Mary's Hospital are not able to diagnose or treat BPPV.
WHAT WILL THE TRIAL INVESTIGATE?
Staff working on the ward will firstly be taught to diagnose and treat BPPV. Patients recruited to the trial will be randomised to 3 different groups (manoeuvres provided by a therapist; patient led exercises and usual care [advice]). A variety of outcome measures will be recorded. Patients will be invited to return at 4 weeks and 12 weeks for follow up.
WHAT WILL THIS INVOLVE?
You will be asked to attend (either in person or remotely) meetings at 6 monthly intervals during the trial
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Better services for brain injury survivors depends getting support from those who have the power to commission those services. The All Party Parliamentary Group run by MP Chris Bryant has been doing some fantastic work in raising awareness. Please invite your MP to this event, where you can tell your MP more about your injury, how it's affected you and what services would benefit you on your road to recovery.
Invite your MP with this draft letter below. Find out who your MP is here.
On Tuesday 28th November 2017, MP Chris Bryant is holding the first All Party Parliamentary Group meeting to discuss brain injury services. Below is a sample letter you can use to send to your local MP (Find out who that is on: http://www.parliament.uk/mps-lords-and-offices/mps/) to ask them to attend the meeting. Add in your own personal story! Your MP is your advocate - write to them with this letter to let them how important brain injury is, and how much better services need to be to support your needs. This is your chance to influence those with the power to makes things happen!
Thank you to all who came along to our Autumn social at Fulham Palace on Saturday. A very pleasant afternoon was whiled amongst the beautiful grounds...
It was particularly to see some members that we had not seen for a while, and even a new member - we hope we'll see more of you at future events! The dependable English weather gave us a few showers but that didn't stop us enjoying tea & cake inside the café. See you at the next event!